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ConferencesPrivacy settings prevent us from displaying this information. Accepted AbstractsMedicine 2.0'11 (Stanford University, USA)Online Patient Education for Teenagers: Disease Self-Management and Medical Decision Support AboutKidsHealth is a 20-member consumer health informatics team that is the patient education group at The Hospital for Sick Children in Toronto, Canada. Our major project is the child health consumer information site www.AboutKidsHealth.ca. It has been estimated that up to 30% of teenagers have some form of chronic condition. These youth face issues including medication compliance and other disease management protocols; a range of psychosocial issues including autonomy, peer relations, body ... Medicine 2.0'12 (Boston, USA)Development and Testing of a Multidimensional IPhone Pain Assessment Application for Adolescents with Cancer Background: Pain is one of the most common and distressing symptoms reported by adolescents with cancer (AWC). Despite advancements in pain assessment and management research, pain due to cancer and/or its treatment continues to be poorly managed. Our research group has developed a native iPhone application (app) called Pain Squad to tackle the problem of poorly managed pain in the AWC group. The app functions as an electronic pain diary and is unique in its ability to collect data on pain i... Medicine 2.0'14 Summit & World Congress (Maui, Hawaii, USA)A Real-Time Smartphone-Based Pain Management App for Adolescents With Cancer: Establishing System Requirements and a Pain Care Algorithm Based on Literature Review, Interviews, and Consensus Background: Pain is one of the most common and distressing symptoms for adolescents with cancer. Pain negatively affects adolescent quality of life, impedes cancer recovery, results in adolescent and family distress, and is associated with long-term morbidity. Pain related to cancer also represents a significant cost burden to the healthcare system and families, with pain being the most common reason for cancer patients to utilize emergency health services. Objective: Given the prevalence... Usability Testing of an Online Self-Management Program for Adolescents with Cancer Background: Cancer is the most common potentially fatal disease of adolescence. Disease management is often complex, involving diverse therapies over long periods of time that require frequent monitoring. The Internet represents an ideal means to deliver education, self-monitoring capabilities, and social support to enhance disease self-management by adolescents with cancer. In response, the bilingual (English and French) "Teens Taking Charge: Managing Cancer Online" Internet-based self-manag... Online Peer-to-Peer Mentoring Support for Youth with Chronic Illness Background: Childhood chronic illnesses can negatively impact health-related quality of life (HRQL). Many youth with these conditions face numerous barriers to accessing services and peer support including absence of services in many geographic areas, long wait lists and limited availability of trained professionals in non-urban centers. Youth frequently use the Internet in order to communicate with peers, to strengthen existing relationships or to develop new ones. Therefore, internet-based ... A Social Networking Tool For Collaborative Care For Patients, Caregivers and Health Care Professionals Background: Adolescents and young adults with cancer, as well as children with complex health needs are considered medically complex, requiring the care and skills of various healthcare professionals (HCP) who are often based in different places or settings. Effective communication between HCP across institutions is critical to achieving optimal health outcomes; however currently there is no organized system for this purpose, which places the burden of coordination of care on patients and the... Medicine 2.0'14 Europe (Malaga, Spain)“Loop” as a Window: Analytics and Social Network Theory to Understand Teams of Care Background: Loop is a secure online tool for ongoing, dynamic team-based communication centered on the patient for the purpose of collaboration in their care. Loop assembles the patient's actual team of care, and adds the patient and informal caregivers as key team members. In areas such as cancer care and palliative care the teams of health care professionals (HCP) involved are often complex, fragmented, non-static and geographically dispersed. To capture the entire team, Loop is cross-setti... A Social Networking Tool For Collaborative Care For Patients, Caregivers and Health Care Professionals Background: Adolescents and young adults with cancer, as well as children with complex health needs are considered medically complex, requiring the care and skills of various healthcare professionals (HCP) who are often based in different places or settings. Effective communication between HCP across institutions is critical to achieving optimal health outcomes; however currently there is no organized system for this purpose, which places the burden of coordination of care on patients and the... Medicine 2.0'14 Summit & World Congress (Maui, Hawaii, USA)“Loop” as a Window: Analytics and Social Network Theory to Understand Teams of Care Background: Loop is a secure online tool for ongoing, dynamic team-based communication centered on the patient for the purpose of collaboration in their care. Loop assembles the patient's actual team of care, and adds the patient and informal caregivers as key team members. In areas such as cancer care and palliative care the teams of health care professionals (HCP) involved are often complex, fragmented, non-static and geographically dispersed. To capture the entire team, Loop is cross-setti... It Doesn’t Have to Hurt: Development and Preliminary Evaluation of a YouTube Video for Parents with Information about How to Help Children with Shots and Needles Needle procedures, such as immunizations, and the pain associated with such procedures are frequently cited as among the most feared experiences of children. Considerable and compelling research evidence exists to support a variety of pharmacological, psychological, physical, and combined pain management strategies to significantly reduce procedure-related pain in children. Despite all of the research and clinical practice guidelines, the majority of children undergoing painful medical proced... Full Paper PublicationsJMIR Human FactorsIn the Loop: The Organization of Team-Based Communication in a Patient-Centered Clinical Collaboration System JMIR mHealth and uHealthCommercially Available Mobile Phone Headache Diary Apps: A Systematic Review Testing the Feasibility and Psychometric Properties of a Mobile Diary (myWHI) in Adolescents and Young Adults With Headaches Mobile Apps for Weight Management: A Scoping Review JMIR Research ProtocolsA Smartphone-Based Pain Management App for Adolescents With Cancer: Establishing System Requirements and a Pain Care Algorithm Based on Literature Review, Interviews, and Consensus Journal of Medical Internet ResearchUsability Testing of an Online Self-management Program for Adolescents With Juvenile Idiopathic Arthritis Development and Testing of a Multidimensional iPhone Pain Assessment Application for Adolescents with Cancer Pain-QuILT: Clinical Feasibility of a Web-Based Visual Pain Assessment Tool in Adults With Chronic Pain Published WithThis user's work may be related toPrivacy settings prevent us from displaying this information. 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