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ConferencesAttended Medicine 2.0'08 (Toronto, Canada) Attended Medicine 2.0'09 (Toronto, Canada) Accepted AbstractsMedicine 2.0'08 (Toronto, Canada)Social uses of personal health information within PatientsLikeMeTM, an online patient community: What can happen when patients have access to one another's data Background: This project investigates the ways in which patients respond to the shared use of what is often considered private information: personal health data. There is a growing demand for patient access to personal health records. The predominant model for this record is a repository of all clinically relevant health information kept securely and viewed privately by patients and their healthcare providers. While this type of record does seem to have beneficial effects for the patient-ph...
Medicine 2.0'09 (Toronto, Canada)Patients Informing Practice: Post-Marketing Drug Data in PatientsLikeMe, an Patient-Centered Online Community (closing keynote - winner of the JMIR Medicine 2.0 Award 2009) Background: Typically, evaluating a new use of an existing drug is either expensive and time consuming or anecdotal and unstructured. In some cases, researchers conduct clinical trials to test off-label uses. Yet in many situations where drugs are off-patent, or are only used by a small population, providers and patients must rely upon their own individual-level experience to inform clinical practice. In this work, we explore how a patient-centered online platform could supplement trials to c... Medicine 2.0'11 (Stanford University, USA)Combining Social Media and Virtual Coaching for building open cooperative care communities. This project examines the problem of how to keep the growing population of older people and those with chronic conditions physically and socially active. In this presentation, we present ideas on the possible application of ambient assisted living and e-health to help people live healthier lives. The ideas are developed in the context of city renewal and smart city program, combining end user care organizations, housing companies, the city council, volunteer and non-profit organizations, univ... Formulating a Design Process for Medicine 2.0: The Case of Kanker.nl Background Medicine 2.0 presents opportunities to develop new patient platforms, but existing projects have had mixed success. A key design problem concerns the tension between developing designs to fit user needs versus designs that anticipate needs unknown to users. How do we design Medicine 2.0 applications that are innovative and support novel modes of patient participation, while still addressing user needs? As a team we are drawn to the ideas of User Centered Design (UCD), where develo... Full Paper PublicationsJournal of Medical Internet ResearchSocial Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data Published WithThis user's work may be related to |
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