Medicine20.net User Profile: Lilas Ali

Lilas Ali (lilas)
Gothenburg University
 
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Lilas.Ali@gu.se

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Gothenburg
Sweden

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Conferences

Attended Medicine 2.0'11 (Stanford University, USA)
Friday, September 16, 2011 to Sunday, September 18, 2011
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Attended Medicine 2.0'13 (London, UK)
Monday, September 23, 2013 to Tuesday, September 24, 2013
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Attended Medicine 2.0'14 Europe (Malaga, Spain)
Thursday, October 9, 2014 to Friday, October 10, 2014
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Attended Medicine 2.0'14 Summit & World Congress (Maui, Hawaii, USA)
Thursday, November 13, 2014 to Friday, November 14, 2014
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Accepted Abstracts

Medicine 2.0'11 (Stanford University, USA)

Design of Web-based Support Systems in Less Structured Contexts - the Case of Young Carers
Mikael Elf*, Ingela Skärsäter*, Lilas Ali*, Barbro Krevers*

Background It has been suggested that at least 4% in a given population of young people are young carers (YC), providing substantial support to diseased family members. Many of them have little or no help from society, partly due to societal neglect of this group and partly due to barriers for help seeking, such as shame, stigma and distrust in health and social care resources (HSCR). The group addressed in this abstract, YCs aged 16-25 and supporting someone with mental illness, may find th...

Young Adult Carers in the Risk Zone. Design of a Health-Promoting, Randomized Two-armed Controlled Trial for Young Adults Who Support People with Mental Illness
Ingela Skärsäter*, Lilas Ali*, Mikael Elf*, Barbro Krevers*

Background Currently, most psychiatric care takes place in out-patient settings, and family members and close friends often assume great responsibility for the mentally ill. It is important, therefore, to learn how best to support patients and the people who care for them, which forms of social support are of greatest value to those struggling with mental illness, and how individuals benefit from specific components, such as information and education, in their daily lives. Pedagogic processe...

In Pursuit of Quality and Usefulness regarding Web-based Support for Young Carers of Persons with Mental Illness
Barbro Krevers Krevers*, Mikael Elf*, Lilas Ali*, Ingela Skärsäter*

Background The Internet is still a new field for health care service delivery. Consequently there is a need to examine the quality and usefulness of web-based support for different target groups. This requires development of a framework that adapts theories and methods concerning quality of care, since these are originally developed for a health care based on personal meetings. Several young carers of persons with mental illness shoulder great responsibility. They are vulnerable and at risk ...

The Impact of a Web-based Intervention on Young Informal Carers of People with Mental Illness
Lilas Ali*

Background Young adults often take responsibility and offer care and support for significant others who suffer from mental illness. This adoption of responsibility has consequences not only for the mentally ill, but also for the carer. As the internet becomes increasingly fundamental to young adults in their daily lives, web-based interventions may be effective in supporting those caring for a person with mental illness. Our objective is to analyze (according to stress, burden, quality of li...

Medicine 2.0'13 (London, UK)

Effectiveness of Web-Based versus Folder Support Interventions for Young Informal Carers of Persons with Mental Illness: a Randomized Controlled Trial.
Lilas Ali*, Barbro Krevers, Nils Sjöström, Ingela Skärsäter*

Background: Changes in psychiatric services mean more young persons have to care for a mentally ill family member or friend while they themselves are in the sensitive transition to adulthood. Objective: Compare the impact of two interventions, a web-based support and a folder support, for young persons who care for people who suffer from mental illness. Method: This study was a randomized control trial, following the CONSORT statements and eConsort support. Primary outcome variable was str...

Medicine 2.0'14 Europe (Malaga, Spain)

Need and Usage of Different Kind of Support among Young Informal Carers of Persons with Mental Illness
Lilas Ali*, Britt Hedman Ahlström, Barbro Krevers, Nils Sjöström, Ingela Skärsäter

Background: The high prevalence of mental illness among young person’s means that their relatives and close friends are exposed to stress by having to take on the responsibility for the support of family members or friends in difficult situations of life when suffering from mental illness. Young informal carers have shown to be exposed to a great burden in which they put their own daily tasks aside in order to stay close to the person who suffers from mental illness. Objective: Explore how ...

Medicine 2.0'14 Summit & World Congress (Maui, Hawaii, USA)

Need and Usage of Different Kind of Support among Young Informal Carers of Persons with Mental Illness
Lilas Ali*, Britt Hedman Ahlström, Barbro Krevers, Nils Sjöström, Ingela Skarsater

Background: The high prevalence of mental illness among young person’s means that their relatives and close friends are exposed to stress by having to take on the responsibility for the support of family members or friends in difficult situations of life when suffering from mental illness. Young informal carers have shown to be exposed to a great burden in which they put their own daily tasks aside in order to stay close to the person who suffers from mental illness. Objective: Explore how ...

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