Conferences

Attended Medicine 2.0'11 (Stanford University, USA)
Friday, September 16, 2011 to Sunday, September 18, 2011
Click here to visit this conference's website

Is registered to attend Medicine 2.0'12 (Boston, USA)
Saturday, September 15, 2012 to Sunday, September 16, 2012
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Accepted Abstracts

Medicine 2.0'09 (Toronto, Canada)

Patients Informing Practice: Post-Marketing Drug Data in PatientsLikeMe, an Patient-Centered Online Community (closing keynote - winner of the JMIR Medicine 2.0 Award 2009)
Jeana H Frost, Sally Okun*, Paul Wicks*, James Heywood

Background: Typically, evaluating a new use of an existing drug is either expensive and time consuming or anecdotal and unstructured. In some cases, researchers conduct clinical trials to test off-label uses. Yet in many situations where drugs are off-patent, or are only used by a small population, providers and patients must rely upon their own individual-level experience to inform clinical practice. In this work, we explore how a patient-centered online platform could supplement trials to c...

Medicine 2.0'12 (Boston, USA)

"But Will It Scale?" Lessons in Growth from PatientsLikeMe
Paul Wicks*

Innovations abound in the field of medicine 2.0 – everything from mobile health apps to social networks, online portals, device arrays, and provider systems. A frequently recurring challenge seems to be the ability to take pilots and single-disease projects to a broader audience, whether that is a new disease, a new population segment, or a different level of engagement that is required. PatientsLikeMe is an online data-sharing research platform founded in 2006 for patients with a single di...

Full Paper Publications

Journal of Medical Internet Research

Sharing Health Data for Better Outcomes on PatientsLikeMe
Paul Wicks, Michael Massagli, Jeana Frost, Catherine Brownstein, Sally Okun, Timothy Vaughan, Richard Bradley, James Heywood
J Med Internet Res 2010;12(2):e19

Patient-reported Outcomes as a Source of Evidence in Off-Label Prescribing: Analysis of Data From PatientsLikeMe
Jeana Frost, Sally Okun, Timothy Vaughan, James Heywood, Paul Wicks
J Med Internet Res 2011;13(1):e6

Use of an Online Community to Develop Patient-Reported Outcome Instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)
Paul Wicks, Michael Massagli, Amit Kulkarni, Homa Dastani
J Med Internet Res 2011;13(1):e12

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