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ConferencesAttended Medicine 2.0'13 (London, UK) Attended Medicine 2.0'14 Europe (Malaga, Spain) Accepted AbstractsMedicine 2.0'11 (Stanford University, USA)Healthtalkonline The DIPEx Charity produces two award-winning websites, www.healthtalkonline.org and www.youthhealthtalk.org, which present people's lived experiences of health conditions, together with other evidence-based health information. The sites feature over 60 health conditions, with almost 3 million hits and 125,000+ visits monthly. The personal health experiences are based on in-depth qualitative research undertaken by the Health Experiences Research Group at the Department of Primary Health Care... The Role of the Internet for People with Pancreatic Cancer: a Qualitative Study of an Illness with a Very Poor Prognosis Background Our goal is to explore the role of the internet for patients with pancreatic cancer to help us understand how people with a particularly life threatening illness cope handle the potential for distressing information about their illness and prognosis. Methods This is a qualitative study using a combination of narrative and semi-structured interviews collected by maximum variation sampling. Qualitative thematic analysis examined both what people said in the interviews (themes) an... Medicine 2.0'13 (London, UK)Background Not so long ago, when the internet was new, there was a small moral panic about the consequences of health information escaping doctors’ control. Variously, and not unrelated to health system funding, commentators feared that waiting rooms might come to resemble ghost towns, or conversely that surgeries would run late as patients with ‘sheaves of printouts’ expected to spend hours discussing unfounded health concerns. Would patients be an easy prey for charlatans or hopele... User-Generated Online Health Content: A Survey of UK Internet Users Background: Evolving internet technology has begun to shift the production of health information from commercial organizations and health systems to healthcare users themselves. People increasingly go online to share their own experiences of health and illness and to access information others have posted on the internet, but this behaviour has not been investigated at a population level in the UK setting. Objective: This study aims to characterize ‘superusers’ of these resources as wel... Sharing Experiences Online: Design of a Randomised Trial to Determine the Feasibility and Efficacy of Three Novel Internet-Based Interventions Based on Patient Experience. Background: Health systems, faced with changing demographics, increased burden of chronic disease and an uncertain financial landscape, have prioritised strategies which promote self-management and the active engagement of people in their own care. The use of the internet as a tool to support such patient-centred initiatives is growing. It is clear that patients use the internet to seek out more than just facts and figures about illness and treatments. People also want practical advice from ... Medicine 2.0'14 Europe (Malaga, Spain)How Might the Internet Help Level Health Inequalities? Background Studies examining the existence and impact of a ‘digital divide’ have largely focused on general population based observations, examining specific demographic groups; most commonly by age, ethnicity and socioeconomic status. There is an observable divide in use of the internet to access healthcare and health information within these groups. Large surveys typically show that older people, ethnic minorities and those in lower socioeconomic groups are less likely to have a... Full Paper PublicationsJournal of Medical Internet ResearchUser-Generated Online Health Content: A Survey of Internet Users in the United Kingdom Published WithThis user's work may be related toPrivacy settings prevent us from displaying this information. Users who have said they are friend/colleague of SueZiebland293Privacy settings prevent us from displaying this information. Users who said they have met SueZiebland293Privacy settings prevent us from displaying this information. Users who said they want to meet SueZiebland293Privacy settings prevent us from displaying this information. |
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