Bio statement

Brian Loew, CEO Brian created Inspire in 2005 with the goal of accelerating clinical trial recruitment through the use of safe, trusted online social networks, organized by medical condition, for patients and their caregivers. Brian believes that patient contributions to medical progress have been historically underappreciated, and great progress in medical research will result from involving patients and fully valuing their contributions. Previously, Brian was responsible for technology strategy for The Washington Post, where he developed innovative products and acted as a technology liaison between the newspaper and washingtonpost.com. Brian has been an Internet entrepreneur since 1994 when he founded worldweb.net, a content management software company that created and launched over 100 websites for major publishers including U.S. News & World Report, Hachette Filipacchi, Time Warner, and The Washington Post Company. Brian has degrees in physics and economics from The George Washington University. He is a regular author and speaker on topics related to e-health, patient empowerment, and healthcare social media.

Conferences

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Accepted Abstracts

Medicine 2.0'12 (Boston, USA)

Online Support Communities: Wellsprings for Research
Brian Loew*

Patients with the rare heart disorder SCAD (spontaneous coronary artery dissection) self-organized on one of our online support communities and began researching their condition several years ago. The patient-directed research drew the attention of the Mayo Clinic, which now is conducted a major SCAD study. The women who banded together to focus attention on SCAD were able to not only because they are united through the online community, and also because they did not seek ermission to do ...

Medicine 2.0'13 (London, UK)

Neurofibromatosis Social Media Trends
Brian Loew*

Neurofibromatosis (NF) patients use NF-related social media for information gathering more than emotional support, according to research released in late February 2013. The findings shed light how patients and caregivers affected by rare diseases use online support communities to help manage their disorders. Nearly two-thirds of respondents to an online survey of the Inspire/Neurofibromatosis Network Support Community said they belong to NF-specific social networks to learn how others are m...

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