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ConferencesNone Yet Accepted AbstractsMedicine 2.0'10 (Maastricht, NL)The StoryBank Project: Digital Stories from Patients and Staff about the Cancer Genetics Service for Wales Background: In 1998, the Cancer Genetics Service for Wales (CGSW) was established as an all-Wales service for individuals with concerns about their family history of cancer. CGSW offers a range of services such as, risk assessment, genetic counseling and genetic testing. Unlike other health care services, once a patient is referred to CGSW, they can remain with the service for life. Individuals going through the service often have unmet information and support needs and they value access ... Full Paper PublicationsJournal of Medical Internet ResearchAn Online Resource of Digital Stories About Cancer Genetics: Qualitative Study of Patient Preferences and Information Needs Published With |
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